News

Our May Feeling Fit Zoom group featured Arielle Levy, a physical therapist from Re+Active Physical Therapy founded by Julie Hershberg (a legend in the FSHD community).

Symposium of the Italian Clinical Group FSHD, Pisa 2023 organized by the Italian Myology Association: “The story of Jaya Motta”

Shared by ANTHONY MANNUZZA, Woodhaven, New York

Living with FSHD has caused great difficulty for me in keeping my balance. I’m sure you’ve heard this many times from others who

The World FSHD Alliance, a network of two dozen national patient groups and advocacy organizations for facioscapulohumeral muscular dystrophy (FSHD),

The FSHD Society is thrilled to announce a significant milestone in the battle against FSHD.

by Helen Cave and the Women on Wellness group

Dry eyes, also known as Ocular Surface Disease (OSD), is a common issue

At our May meeting, one member shared a great question: Has anyone had experience with falling backwards due to their lordosis? She didn’t feel any warning signals, and just fell

by Amanda Hill, FSHD Society

How do I find clinical trials that are recruiting participants?

Our website is one of the best ways to find clinical trials that are recruiting.

The interview is edited by Maria Giovanna Tortora for the FSHD Group of UILDM.

When will the trial start?

The NeMO Center in Milan is ready to start recruiting and