Overview of FSHD research around the world
By Fabiola M. Bertinotti (volunteer and international representative of the association at the most important organizations for FSHD)
The TOP question
The queen of all the questions coming from the world of FSHD patients is “when will we have a cure?”. In more concrete terms, this question translates into understanding what the panorama of the various scientific studies currently underway in the world looks like.