News
Nerve mobility and pain
Our May Feeling Fit Zoom group featured Arielle Levy, a physical therapist from Re+Active Physical Therapy founded by Julie Hershberg (a legend in the FSHD community). Following the introductory information below, you’ll find a downloadable list of her exercises and the video of the Zoom session.
Symposium of the Italian Clinical Group FSHD, Pisa 2023 organized by the Italian Myology Association
Symposium of the Italian Clinical Group FSHD, Pisa 2023 organized by the Italian Myology Association: “The story of Jaya Motta”
World FSHD Alliance annual leadership summit Working to advance clinical trial readiness and access to treatments for FSHD
The World FSHD Alliance, a network of two dozen national patient groups and advocacy organizations for facioscapulohumeral muscular dystrophy (FSHD),
Accessibility Hack: Sandals for the shower
Shared by ANTHONY MANNUZZA, Woodhaven, New York
Living with FSHD has caused great difficulty for me in keeping my balance. I’m sure you’ve heard this many times from others who have this condition.
Fulcrum Therapeutics has announced successful completion of patient enrollment in REACH Phase 3 trial
The FSHD Society is thrilled to announce a significant milestone in the battle against FSHD.
