Shared by ANTHONY MANNUZZA, Woodhaven, New York

Living with FSHD has caused great difficulty for me in keeping my balance. I’m sure you’ve heard this many times from others who have this condition.

The World FSHD Alliance, a network of two dozen national patient groups and advocacy organizations for facioscapulohumeral muscular dystrophy (FSHD),

by Helen Cave and the Women on Wellness group

Dry eyes, also known as Ocular Surface Disease (OSD), is a common issue with many in the FSHD community. Symptoms are often described as grittiness, itchiness, or burning especially upon waking up in the morning and/or later in the day.

The FSHD Society is thrilled to announce a significant milestone in the battle against FSHD.

At our May meeting, one member shared a great question: Has anyone had experience with falling backwards due to their lordosis? She didn’t feel any warning signals, and just fell back.

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