Taking charge of people with FSHD. Treatment, prospects and therapeutic opportunities. Two live webinars dedicated to patients and health professionals promoted by the EpiThe4FSHD project and the FSHD-UILMD Patient Group.

At our December 13 Wellness Hour, Jennifer Egert led a short session on mindfulness in which she asked people to focus their awareness on their body sitting.

FSHD patients increasingly active and, as UILDM president Marco Rasconi likes to say: "Present!" in all social and medical-scientific circumstances. So here we are, present at the 1st FSHD symposium organized by the newborn FSHD group coordinated by prof. Massimiliano Filosto, vice president of the UILDM medical-scientific commission and clinical director of NeMO Brescia, together with prof. Giacomo Comi, current president of AIM.

We introduce this important piece of research making use of a comment from Prof. Massimiliano Filosto, vice president of the UILDM medical-scientific commission and clinical director of NeMO Brescia and leader of the AIM-FSHD group that the FSHD patients of UILDM's Group have consulted to learn more.

by David Younger, Austin, Texas

Over the past ten to fifteen years, I have developed an arsenal of products that I use to stay as healthy and active as possible.

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