News
Accessibility Hack: Sandals for the shower
Shared by ANTHONY MANNUZZA, Woodhaven, New York
Living with FSHD has caused great difficulty for me in keeping my balance. I’m sure you’ve heard this many times from others who have this condition.
World FSHD Alliance annual leadership summit Working to advance clinical trial readiness and access to treatments for FSHD
The World FSHD Alliance, a network of two dozen national patient groups and advocacy organizations for facioscapulohumeral muscular dystrophy (FSHD),
Eye Care Tips and Tricks for FSHD
by Helen Cave and the Women on Wellness group
Dry eyes, also known as Ocular Surface Disease (OSD), is a common issue with many in the FSHD community. Symptoms are often described as grittiness, itchiness, or burning especially upon waking up in the morning and/or later in the day.
Fulcrum Therapeutics has announced successful completion of patient enrollment in REACH Phase 3 trial
The FSHD Society is thrilled to announce a significant milestone in the battle against FSHD.
Falling backwards and what to do about it
At our May meeting, one member shared a great question: Has anyone had experience with falling backwards due to their lordosis? She didn’t feel any warning signals, and just fell back.
