News
FSHD UILDM Group, opportunities for exchange and growth
Maria Giovanna Tortora, 32 years old, received the diagnosis of facio-scapulo-humeral dystrophy at 14. At the time, there was still not much information about the disease.
News from the FSHD Congress, 3 Italian sites for the Losmapimod phase 3 trial
The annual FSHD International Research Congress (IRC) - organized by FSHD Society in Florida - is the world's premier conference focusing on facioscapulohumeral muscular dystrophy research. Clinicians, researchers, pharmaceutical industry leaders and basic scientists speeches about new developments, launch new activities and coordinate research and clinical activities.
The project EpiThe4FSHD presented at the UILDM National Events
The international project EpiThe4FSHD was presented on Friday, May 20 in Lignano Sabbiadoro at the Bella Italia Village. The project leader is the research group of the San Raffaele Institute in Milan coordinated/directed by Davide Gabellini.
FSHD Society, a growing collaboration
The secret to making a project work? Putting people for whom it was created at the center.
