Our May Feeling Fit Zoom group featured Arielle Levy, a physical therapist from Re+Active Physical Therapy founded by Julie Hershberg (a legend in the FSHD community). Following the introductory information below, you’ll find a downloadable list of her exercises and the video of the Zoom session.

Symposium of the Italian Clinical Group FSHD, Pisa 2023 organized by the Italian Myology Association: “The story of Jaya Motta”

The World FSHD Alliance, a network of two dozen national patient groups and advocacy organizations for facioscapulohumeral muscular dystrophy (FSHD),

Shared by ANTHONY MANNUZZA, Woodhaven, New York

Living with FSHD has caused great difficulty for me in keeping my balance. I’m sure you’ve heard this many times from others who have this condition.

The FSHD Society is thrilled to announce a significant milestone in the battle against FSHD.

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