News
Leading-edge CRISPR biotech chooses FSHD as its first disease target
We introduce this important piece of research making use of a comment from Prof. Massimiliano Filosto, vice president of the UILDM medical-scientific commission and clinical director of NeMO Brescia and leader of the AIM-FSHD group that the FSHD patients of UILDM's Group have consulted to learn more.
The UILDM-FSHD patient group interviews Comi and Filosto at the FSHD symposium
FSHD patients increasingly active and, as UILDM president Marco Rasconi likes to say: "Present!" in all social and medical-scientific circumstances. So here we are, present at the 1st FSHD symposium organized by the newborn FSHD group coordinated by prof. Massimiliano Filosto, vice president of the UILDM medical-scientific commission and clinical director of NeMO Brescia, together with prof. Giacomo Comi, current president of AIM.
Pain management in FSHD
Chronic pain is one of the more difficult aspects of living with FSHD, and also one of the most challenging to manage.
Dave Younger’s exercise arsenal
by David Younger, Austin, Texas
Over the past ten to fifteen years, I have developed an arsenal of products that I use to stay as healthy and active as possible.
Talking to my 16-year-old self
by Haviva Ner-David*
The last line of my author bio reads: “Rabbi Haviva Ner-David lives with a degenerative genetic form of muscular dystrophy called FSHD, which has been one of her greatest teachers.”
