News
Everyday Mindfulness
At our December 13 Wellness Hour, Jennifer Egert led a short session on mindfulness in which she asked people to focus their awareness on their body sitting.
Leading-edge CRISPR biotech chooses FSHD as its first disease target
We introduce this important piece of research making use of a comment from Prof. Massimiliano Filosto, vice president of the UILDM medical-scientific commission and clinical director of NeMO Brescia and leader of the AIM-FSHD group that the FSHD patients of UILDM's Group have consulted to learn more.
Dave Younger’s exercise arsenal
by David Younger, Austin, Texas
Over the past ten to fifteen years, I have developed an arsenal of products that I use to stay as healthy and active as possible.
The UILDM-FSHD patient group interviews Comi and Filosto at the FSHD symposium
FSHD patients increasingly active and, as UILDM president Marco Rasconi likes to say: "Present!" in all social and medical-scientific circumstances. So here we are, present at the 1st FSHD symposium organized by the newborn FSHD group coordinated by prof. Massimiliano Filosto, vice president of the UILDM medical-scientific commission and clinical director of NeMO Brescia, together with prof. Giacomo Comi, current president of AIM.
Pain management in FSHD
Chronic pain is one of the more difficult aspects of living with FSHD, and also one of the most challenging to manage.
